Today Kelson had his follow up hearing test at the ECHO center (Expanding Children's Hearing Opportunities). The goal was to have him in a deep sleep during the test. When we arrived at the center, we went to a room with a rocking chair to feed Kelson and make him sleepy. They attached electrodes to his forehead and behind his ears. Shortly after getting a full belly, Kelson was asleep in my arms and they were able to begin the test. They placed a tube in his ear that was attached to the computer to produce sounds. Kelson was an excellent patient.
Unfortunately the results of the test were not what we were hoping for. Kelson has a hearing impairment called "Auditory Neuropathy" (AN). His ears can hear sounds, but the nerves have trouble recognizing sounds. Basically there is a miscommunication between his ear and his brain. We will not know the severity of his condition until he continues to develop, but hopefully early intervention will help the prognosis. We were told that this condition could improve as Kelson matures, and there are devices that can assist with hearing down the road. For right now we just need to wait and see.
Even though this was disappointing news, after what we have been through, this is a minor complication. Kelson has broken so many belief barriers, that I'm sure he won't let this slow him down. We know for a fact that God will not give us more than we can handle.
Otherwise Kelson is doing great. Last night he ate at 10 PM, went to sleep, ate at 2:30 AM, went to sleep, and woke up around 5:30. Hopefully he has his days and nights straight so we can continue to get a pretty full nights sleep. It is exciting to have our first weekend home together!
Friday, July 6, 2012
ECHO
Posted by Trever & Krista at 7:48 PM
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7 comments:
Hang in there. As you say, you won't know what this will entail until he gets a little older and they will work with him. You aren't alone with this. One day at a time. He is your miracle baby! If I can help in any way, please let me know. Grandma will let you know when I will be down and hope to see all of you then. Love ya, Janet
Hi Trever and family: I read your blog nearly every day and am sorry to hear this news. So glad you're all home together now though and we'll continue to keep you in our prayers!
Sarah Shike & family
Just another hurdle we know Kelson can clear!!
Ria
Hey guys-
It's like you said "God never gives you more than what you can handle" Kelson will beat this just like he has everything else. Stay strong and remember that everybody is praying for you all!!
Nicole, Chad, Haley and Max
Thanks for sharing. Enjoy your family time at HOME, and we'll keep praying!
-Bernadette
i will be at work on tuesday and would be excited to see kelson anytime
So glad Kelson is home & u can get back to mostly normal! Looking forward to seeing all of u at the birthday party.
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