Kelsons chest tube continues to drain. In fact, it put out over 50 cc on the night shift. This means that even though the new formula changed the consistency of the fluid, it still appears to be leaking. This brings us to another bump in the road. The doctors are trying to be as conservative as possible, and continue to move through the "easy fixes". The next step is to try a relatively experimental treatment with a drug called octreotide. Octreotide has not been approved for use in the treatment of chylothorax, but has been successful in 14 of the 19 published clinical trials. Since there is little to no research on this treatment, the side effects and correct dosage is unknown. I did quite a bit of research on the drug, and feel the good can definitely outweigh the bad, but it is still a gamble.
They have not made many changes to the ventilator, but Kelson is now at 21% oxygen, which is the same as room air. Hopefully they can continue to make small changes and remove the breathing tube.
Claire will be spending the next three nights with my mom, as we adjust to doing some work, and hopefully closing on the new house.
Hopefully the month of June will bring us more luck, and we can start to see the light at the end of the tunnel.
Tuesday, May 29, 2012
New approach
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4 comments:
darn, I thought that new formula was going to be the golden ticket. Praying for you guys day in and day out. Non-approved medicine makes me a very nervous wreck, but I know you guys have done your research!!
Love Ya,
Ria
Good morning, Keeping all of you in my prayers. It is impoissible to be two places at once, but Kelson knows you will be there for him and the nurses are his second family. You have one tough little boy. Elaine Franzen
thinking of you daily and remain in my prayers kris cramer gibson area hospital
Continuing to pray for the medical team to find the right solution! Non-approved or not, they will continue to monitor him closely and do what is best!
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