Sunday, May 6, 2012

A night at home

Kelson had a pretty eventful night last night. They decided to remove his left chest tube, and during this process he started spitting up for the first time. This caused them to temporarily stop his feedings. The Doctor thinks this was just due to him being agitated, and they restarted his feedings today at 4 mL per hour. He seems to be tolerating them well. I just spoke to a nurse, and she said his weight was up to 4 lb 12 oz. Kelson rested for the majority of the day, and got to meet Great Grandma Ficklin, and Super Great Aunt Sue. My parents brought Claire down this morning, and she was not acting herself. She was quiet, and extremely clingy. We decided to go for a walk and take her for lunch, to spend some special time with us. However she continued to act the same way, and even had a meltdown in the restaurant. This is very unusual behavior for her, but given the recent events, not unexpected. It was at this point Krista and I decided we needed to spend tonight at home. Several nurses encouraged and supported our decision, so at 7 PM, we tucked Kelson in, and came home. Even though it is hard to be an hour away, it is the best thing for Claire. We are welcome to call the NICU at at time to get updates. Claire was Very excited to see all of her animals, and to sleep in her own bed. Tomorrow we will take her to the babysitter like normal, and she will have a sleepover there. We hope to get to the hospital around 8 AM. The next step for Kelson is getting the right chest tube out, and then they will try to switch him to a traditional ventilator. We spent some time today visiting with the flight nurse who saved Kelsons life. It was nice to get to know her a little better. She has been in the NICU for 7 years, and a flight nurse for 4. She said that this is by far the most amazing case she has seen. Kelson is definitely making at impact on people, and inspires me every day!

6 comments:

Anonymous said...

glad you guys went home for the night! We all know Kelson is in awesome hands with all the NICU nurses and doctors! Awesome news about meeting the flight nurse!!

Ria

Connie said...

Trever, I had no idea of what has been going on in your and Krista's life. I don't think I have even seen you except for once since we left working for Dale. I am amazed at the progress Kelson has made by reading your blog. I have added you and your family in my prayers. We both know that God in in control and I will also pray for his grace in your lives, especially now. Connie

Marla said...

I'm so glad that you were able to get home with Claire. How exciting to get to meet the flight nurse! We're looking forward to hearing about another week filled with awesome progress for Kelson!

Sue Read said...

First of all,thanks again for your blog!!! So glad Kelson is doing better every day! And so glad you were able to spend time at home and with Claire!!!!

Andrew and Melissa Haars said...

Your bed is going to feel so, so good! Kelson gets his strength from his Dad and Mom. You've got to be so proud of Claire for being such a good big sis. Thinking of you.

Luci DeFauw said...

Thank you so much for your blog. I love reading of Kelson's amazing progress. I think of you both (all) often. Will keep praying for continued improvement and some more peace in your lives.